ALS.COMMUNITY: Our Purpose
A message from the ALS.COMMUNITY team đź’™
We want to take a moment to thank every one of you for the heart, honesty, and support you’ve brought to this community. Whether you’ve shared your story, welcomed someone new, or simply logged in to connect — you are what makes this platform meaningful.
Today, some of our board members—each living with ALS—helped create a short video about what this community is all about: connection, understanding, and never facing this disease alone.
👉 Watch the video here: https://youtu.be/W9NAXeB3r54?si=a0faHG5rZj7inY9o
If the message resonates with you, we’d be incredibly grateful if you shared it with the people in your world — friends, family, support networks, and even your doctors and care teams. Many providers don’t yet know about ALS.COMMUNITY, and your voice is often the most trusted way they learn.
Every share helps another family discover a place where they are understood.
Every conversation helps a clinician guide someone to support sooner.
Every story helps end ALS isolation.
Thank you for being part of this community — for your strength, your vulnerability, and your willingness to lift others up simply by being here.
Together, we’re making the world bigger for every ALS family.
With gratitude,
The ALS.COMMUNITY Team